You and Your Family

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"MESO" QUESTIONNAIRE: YOU AND YOUR FAMILY

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I feel challenged/stressed by:
1. Financial difficulties
- Yes
- No
- Not sure
- Not applicable
2. Funding difficulties
- Yes
- No
- Not sure
- Not applicable
3. Not having enough time for my spouse/partner
- Yes
- No
- Not sure
- Not applicable
4. Not having enough time for my other children
- Yes
- No
- Not sure
- Not applicable
5. Not knowing what to tell others about my child’s condition/disorder
- Yes
- No
- Not sure
- Not applicable
6. Others’ reactions to my child’s condition
- Yes
- No
- Not sure
- Not applicable
7. Others’ reactions to my child’s behaviour
- Yes
- No
- Not sure
- Not applicable
8. Not always knowing how to care for my child at home
- Yes
- No
- Not sure
- Not applicable
9. Not always knowing how to entertain my child at home
- Yes
- No
- Not sure
- Not applicable
10. Not knowing who my child’s friends are
- Yes
- No
- Not sure
- Not applicable
11. Not knowing if my child has any close friends
- Yes
- No
- Not sure
- Not applicable
12. Not knowing if my child is treated well and fairly by his/her teachers
- Yes
- No
- Not sure
- Not applicable
13. People sometimes blaming me/my family for my child’s condition
- Yes
- No
- Not sure
- Not applicable
14. People not understanding what my family goes through, on a daily basis
- Yes
- No
- Not sure
- Not applicable
15. Not having someone to talk to
- Yes
- No
- Not sure
- Not applicable
16. Feeling that I am alone in the world
- Yes
- No
- Not sure
- Not applicable
17. Feeling that I am to blame for my child’s condition
- Yes
- No
- Not sure
- Not applicable
18. Feeling very self-conscious around others, when I have my child with me
- Yes
- No
- Not sure
- Not applicable
19. Feeling that I am not a good parent
- Yes
- No
- Not sure
- Not applicable
20. Feeling a little desperate sometimes
- Yes
- No
- Not sure
- Not applicable
21. Not being as close to my child with special needs as I would like to be
- Yes
- No
- Not sure
- Not applicable
22. Not being as close to my other children as I would like to be
- Yes
- No
- Not sure
- Not applicable
23. Not having energy for everyday activities
- Yes
- No
- Not sure
- Not applicable
24. Not getting enough sleep
- Yes
- No
- Not sure
- Not applicable
25. Waking up several times at night
- Yes
- No
- Not sure
- Not applicable
26. Waking up very early in the morning and not being able to get back to sleep
- Yes
- No
- Not sure
- Not applicable
27. Not eating enough
- Yes
- No
- Not sure
- Not applicable
28. Overeating
- Yes
- No
- Not sure
- Not applicable
29. Not being in agreement with my spouse/partner, when it comes to the education of our child
- Yes
- No
- Not sure
- Not applicable
30. The fact that my children are ashamed of their sibling with special needs
- Yes
- No
- Not sure
- Not applicable
31. The fact that my children are not including their sibling with special needs in their play activities
- Yes
- No
- Not sure
- Not applicable
32. Not knowing how much to tell my children about their sibling’s special need
- Yes
- No
- Not sure
- Not applicable
33. My children accusing me of spending more time with my child with special needs than I spend with them
- Yes
- No
- Not sure
- Not applicable
34. The possibility that my other children might get diagnosed with a special need one day
- Yes
- No
- Not sure
- Not applicable
35. Finding it difficult to concentrate on every day activities
- Yes
- No
- Not sure
- Not applicable
36. Not being able to talk to other parents who have children with special needs
- Yes
- No
- Not sure
- Not applicable
37. Continuing to hope that my child will “outgrow” his/her condition
- Yes
- No
- Not sure
- Not applicable
38. Drinking alcohol more often than I used to
- Yes
- No
- Not sure
- Not applicable
39. Putting myself on prescription drugs, for the first time in my life
- Yes
- No
- Not sure
- Not applicable
40. Taking more prescription drugs (e.g. Prozac) than I used to
- Yes
- No
- Not sure
- Not applicable
41. My spouse/partner and I being close to getting separated/divorced
- Yes
- No
- Not sure
- Not applicable
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I especially have difficulty communicating/getting along with:
42. My spouse/partner
- Yes
- No
- Not sure
- Not applicable
43. My child with special needs
- Yes
- No
- Not sure
- Not applicable
44. My other children
- Yes
- No
- Not sure
- Not applicable
45. Members of my extended family
- Yes
- No
- Not sure
- Not applicable
46. Friends
- Yes
- No
- Not sure
- Not applicable
47. Acquaintances
- Yes
- No
- Not sure
- Not applicable
48. The professionals who work with my child
- Yes
- No
- Not sure
- Not applicable
49. My colleagues at work
- Yes
- No
- Not sure
- Not applicable
50. My spiritual/religious advisors
- Yes
- No
- Not sure
- Not applicable
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I feel that the needs that are associated with my child’s condition:
51. Have added stress to my life (e.g. having to schedule therapy appointments, having to pay for therapy…)
- Yes
- No
- Not sure
- Not applicable
52. Prevent me from having people come to my home
- Yes
- No
- Not sure
- Not applicable
53. Prevent me from going places
- Yes
- No
- Not sure
- Not applicable
54. Prevent me from planning a vacation
- Yes
- No
- Not sure
- Not applicable
55. Affect my general well-being and mood
- Yes
- No
- Not sure
- Not applicable
56. Prevent me from doing my job well
- Yes
- No
- Not sure
- Not applicable
57. Prevent me from doing household chores
- Yes
- No
- Not sure
- Not applicable
58. Have created a lot of friction between me and my partner/spouse
- Yes
- No
- Not sure
- Not applicable
59. Have prevented me from saving money, because his/her therapies cost so much
- Yes
- No
- Not sure
- Not applicable
60. Seem to be getting worse, as he/she gets older
- Yes
- No
- Not sure
- Not applicable
61. Stand in his/her way of making friends
- Yes
- No
- Not sure
- Not applicable
62. Form a barrier between him/her and his/her siblings
- Yes
- No
- Not sure
- Not applicable
63. Form a barrier between him/her and other children in our extended family
- Yes
- No
- Not sure
- Not applicable
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I feel that:
64. I worry too much about my child’s future
- Yes
- No
- Not sure
- Not applicable
65. I worry too much about the future of my other children
- Yes
- No
- Not sure
- Not applicable
66. My children worry that they are going to have children with special needs, when they are older
- Yes
- No
- Not sure
- Not applicable
67. Others do not understand the stress that I am under
- Yes
- No
- Not sure
- Not applicable
68. I need more funding to give my child what he/she needs
- Yes
- No
- Not sure
- Not applicable
69. I need to talk to parents who have been through what I have been through, but I don’t know where to find them
- Yes
- No
- Not sure
- Not applicable
70. My child needs to be around/talk to other children who have special needs, so he/she will know he/she is not alone
- Yes
- No
- Not sure
- Not applicable
71. I need more information about the effect of my child’s condition on older children
- Yes
- No
- Not sure
- Not applicable
72. I have all the support that I need from my spouse/partner
- Yes
- No
- Not sure
- Not applicable
73. My child has all the support he/she needs from his/her therapists
- Yes
- No
- Not sure
- Not applicable
74. I am not always able to help my child with school work, because English is not my native language
- Yes
- No
- Not sure
- Not applicable
75. I don’t always understand what the team working with my child is trying to tell me, because English is not my native language
- Yes
- No
- Not sure
- Not applicable
76. I can’t read what my child’s school sends me, because I can’t read or write well in English
- Yes
- No
- Not sure
- Not applicable
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There are a lot of recreational programs in the community that my child cannot access because:
77. The time of these programs does not correspond with my child’s schedule
- Yes
- No
- Not sure
- Not applicable
78. The location of these program is very far from our home
- Yes
- No
- Not sure
- Not applicable
79. These programs cost too much
- Yes
- No
- Not sure
- Not applicable
80. These programs are not wheelchair accessible
- Yes
- No
- Not sure
- Not applicable
81. These programs cannot accommodate a child with behavioural difficulties
- Yes
- No
- Not sure
- Not applicable
82. These programs do not accommodate a child with a sensory impairment
- Yes
- No
- Not sure
- Not applicable
83. These programs do not accommodate a child with a sensory processing disorder
- Yes
- No
- Not sure
- Not applicable
84. These programs do not accommodate a child with an intellectual impairment
- Yes
- No
- Not sure
- Not applicable
85. The layout of these programs does not suit my child (e.g. too much sensory information…)
- Yes
- No
- Not sure
- Not applicable
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"MESO" QUESTIONNAIRE: YOU AND YOUR FAMILY

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